I am just going to copy and paste my facebook updates here also.   I thought I would have time to sit at the computer each day but it just hasnt been the case. Every minute is devoted to her.

Ali is in the Rehab hospital. She has limited use of her hands and a little bit of range of motion from the elbows down along with "some" movement of her shoulders, the right arm being the strongest. Her face, trunk and legs are still paralyzed. She had developed an infection and more recently she has gall bladder issues and her liver tests came back high so a gastroenterologist has been in to see her and is watching her closely. She is in excruciating pain, she's very fatigued but bless her little heart she attempts to do anything they ask of her which isn't much, hold a spoon, hold her pill cup, etc, very basic stuff but she is my hero!!! I've taken over caring for her from the minute I arrived and oh boy what a team we are, a pathetic team at times but we get things done.

Even though I was well aware of her condition every step of the way before I got here, nothing could have prepared me for the reality of it, I feel like I have been going on adrenaline only and haven't allowed myself a moment yet to step back and take it all in. I am afraid if I do I will just explode.  The nurses and staff are amazing!!!!   They brought a bed into her room for me and I am staying with her 24/7. If I take a 2 minutes break to step outside Ali is on the phone ushering me back to her room, it is quite adorable. Before GBS struck her she could be quite a demanding little chit, but here and now she is so full of love and sweetness. I cannot express how proud I am of her and her determination to fight this.   

And the video below is for my special someone here, he will know why!!! I already told her when she is up and walking that her and I need to have someone video us doing the happy dance together. 

I had some spare time tonight and just thought I would pop my head in and say hello.  It's been rough in my world the past couple weeks. My daughter, Ali, has been in the hospital in icu for the past 10 days, diagnosed with Guillain-Barre Syndrome. She is trapped within her own body and it is heart wrenching not being able to do a damn thing to help her except love her with every fiber of my being.  Life sure doesn't give us any breaks, just one blow after another and it never seems to end. But, we endure!!!!

Anyway, just thought I would pop over here tonight and read a bit and say hello....    I do hope you are all doing well, many of you I keep in touch with on facebook and for those of you not on facebook I do miss you! This website is never far from my thoughts even if I am not on here.

 

PAPASTALKIN!!!! ??   

 

I really need to come on here more often, I just realized you changed your name again, OMG   I'm laughing so hard I cant swallow my coffee!

Happy New Year everyone!!!    I hope the new year brings you all happiness and prosperity!!  xoxoxox  Love You all!!

Merry Christmas everyone!!!   

The photograph below is being passed around on facebook and I took one look and my immediate thoughts were:

"Yep, at the end of the day that is all that matters right?   You forgot the free munchies and free cell phone to invite your buddies over to the party!!  This country is doomed.  Core values are lost! But hey, just smoke a joint and all yer worries will just fade away!"

When you have had enough!!!!  (allow a minute for the image to fully load and then click on it!!!!)

I AM SO SORRY IT TOOK SO LONG!!!   

For this one time only you may throw rotten eggs at me, call me goofy names, super glue my ass to my computer chair.....     go ahead...  I deserve it...   


Please resume your regular posting now.................................   

I think rumors are floating around that this site is shutting down, it is not. I am just an absent owner and will continue to be for the coming months.

I moved to florida, my granddaughter was born, I had to baker act my son, I am heading up to new york in 2 weeks for work, just a tremendous load of stressful issues going on at the moment preventing me from being here. I am so sorry but my priorities are that my family is first....   

now stop with the rumors.   

Catherine Marie was born last night at 7:51 pm  she weighed 7 pounds exactly and is 20.5 inches tall.       I am so proud of my daughter, she pushed for 4 minutes and Catherine was born. 

I heard through the grape vine that a corrections officer in Texas was speared by one of the inmates on death row. The officer will now have to go through 2 years of blood tests because this particular inmate is "dirty". Please pray that everything comes back fine for this officer and let's never forget that officers such as this one put themselves on the line every day to protect the rest of us from these criminals.

I leave NY in a week and a half and head south!!   My daughter is due July 1st with my first grandbaby and there is no way I am going to be a long distance grandma to little Catherine (yes, it is a girl) so I'm packing it in and heading back to Florida... 

Many of you can reach me on facebook...  if there is a problem with the site my phone number is on my facebook page so please do not hesitate to use it.  I plan on checking in but who knows when she will go into labor and once she does i wont be online much for a while - I'll be too busy spoiling a baby  I'm moving back home to just north of orlando but my daughter lives in hollywood and she has already asked me to stay a while after the baby is born to help her out, so I think I might be very busy for the next month or two.... 

I'm so excited!!!

This topic has been moved to The Crapper.

http://off2dr.com/smf/index.php?topic=13784.0

As you know my Dad went in for his Whipple surgery back on March 7th and they ended up not being able to remove the tumor because it had spread more than what they realized. Anyway, he hasn't really been eating much at all since then and now Hospice is involved.  He fell on Saturday and when I spoke to him on Sunday he did not sound like his usual strong self, it shocked me so much I had a meltdown...........         It is only a matter of a couple weeks now, maybe 4 or 6 if we are fortunate but with him not eating who knows..      

So please understand if I am a bit cranky and short or even nonresponsive for the next few weeks.

take a look:  http://www.murderauction.com       

do a quick search on the page for: jeremy jones