Just a little update on my precious, beautiful, strong, courageous, fighting daughter. There's not much to report as far as the paralysis, it's the same, from the head down. Her hands (from the elbows down) have regained a lot of movement but absolutely no strength. She has excruciating pain in her calves, feet, hands, elbows and on her head in the temple area, they have upped her pain meds a few times and added additional meds, all in all she has 12 medications prescribed to her but of course hospital staff allow her to refuse the ones she doesn't want to take. She is amazing in Physical and Occupational therapy and gives it 100% effort on her part, she has a great attitude!!!! It is going to be a long journey and this past week the doctors told us that she will be going home in pretty much the same condition she is now with the exception of a little more upper body strength.
But she is strong and determined to beat this beast, Guillain-Barre Syndrome!!!!!! ♥ She may not walk out of the hospital when the time comes but SHE WILL WALK AGAIN!!!
Oh and the respiratory doctors have released her! She is done with that therapy. Still having an issue with low blood pressure, low potassium, high liver enzymes and she has only ate 3 meals in the past 6 days but today and yesterday were those meals so hopefully her appetite is returning again. It seems like everyday we either take 2 steps forward and 1 back, or some days it is 1 step forward and 1 back. It's going to be a long haul.... please continue to keep her in your prayers.